Ehlers-Danlos Foundation of New Zealand

 

 

 

 

 

Other Groups

Australia

Australian EDS Support Group

Melissa Sheehy (President)

PO Box 106,

Marulan NSW 2579,

Australia

Phone/Fax:61-2-48411111

E-mail: prairie@goulburn.net.au

 

Belgium

Belgium EDS Support Group

Claudine Waelput, Antwerpsesteenweg 783,

B-9040 St. Amandsberg,

BELGIUM 9040

Phone: 09-228-6116

E-Mail: Ina.devreese@wol.be

 

 

Canada

Canadian Ehlers-Danlos Association (CEDA)

Jill Douglas-Hand

99 Cunningham Drive,

Maple,

Ontario L6A 2C2

CANADA

Phone: 416-334-2101

Fax: 905-761-7567

E-Mail: Jill@ceda.ca

Website

 

 

Denmark

The Danish Ehlers-Danlos Association

Lykke Rehder

Ellemosevej 50

2900 Hellerup

Denmark

Phone/Fax: +45 39 66 91 55

E-Mail: kontakt@ehlers-danlos.dk

Website

 

 

France

Association Francaise des Syndromes d'Ehlers-Danlos

Marie Helene Boucand

AFSED 38 avenue Pompidou 69 003,

Lyon,

FRANCE

Phone: 33-803-00-11-33

Fax: 33-04-78-53-92-49

E-mail: m.h.boucand@wanadoo.fr

Website

 

 

Germany

Deutsche Ehlers-Danlos Initiative e.Va Germany

Juergen Grunert, 

Cadolzburger Str, 119,

90766 Fuerth,

GERMANY

Phone: 49-911-9733539

Fax: 49-911-9733529

E-mail: grunert@odn.de

 

 

Italy

Associazone Italiana per la Sindrome di Ehlers-Danlos (A.I.S.E.D)

c/o Dr Kathryn Dyne,

Department of Biochemistry,

Via Taramelli 3B,

27100 Pavia,

ITALY

Phone: 0039-382-507231/222

E-Mail: dbioc@unipv.it

 

 

Japan

Asebi-Kati (Rare Serious Disease Patients National Association)

3-18-9-204 sengoku,

bunkyou-ku, Tokyo 112-0011-

JAPAN

Phone: 81-3-3943-7008

Fax: 81-3-3944-6460

E-mail: asebi@mc.kcom.ne.jp

 

 

Netherlands

Vereniging van Ehlers-Danlos PatiUnten (VED),

Krista te Vaanholt,

Postbus 25,

7213 ZG GORSSEL,

THE NETHERLANDS

Phone: 031-575-4-546120

E-mail: ehlers@tref.nl

 

 

Norway

Norsk Forening for Ehlers-Danlos Syndrom

Leader Eva Melseter,

Strande

6400 Molde,

NORWAY

Phone: +47-71-21-86-69

E-mail: maci@c2i.net

Website

 

 

Sweden

Ehlers-Danlos Syndrome National Association

Britta Berglund (Chairman & Founder)

Bjorkvagen 77,

14735 Tumba,

SWEDEN

Phone: 46-8-53039433

E-mail: eds@swedenmail.com

Website

 

 

United Kingdom

Ehlers-Danlos Syndrome Support Group

The Director,

PO Box 337
Aldershot 
Hampshire GU12 6WZ

ENGLAND

Phone: +44-1252-690-940

E-mail: info@ehlers_danlos.org

Website

 

 

United States of America

Ehlers-Danlos National Foundation

Linda Neumann-Potash

3200 Wilshire Blvd., Suite 1601

Los Angeles, CA 90010

USA

Phone: 213-368-3800

Fax: 213-427-0057

E-mail: loosejoint@aol.com

Website

 

 

 
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