News for December 2009
My computer has been upgraded the last few weeks so have been completely unable to access any files or email addresses so am currently beginning to catch up with everything so if you haven't heard from me please be patient and I will get back to you ass soon as possible.
I am always seeking stories for our newsletter Loosely Speaking so if you have an interesting anecdote, piece of information or even a poem to share please email me.
On the website I have included a link for people wishing to make online donations to the EDFNZ. If you wish to make a donation but don't have a credit card then cheques and money orders are gratefully accepted. The generosity of the general public allows us to continue our efforts at educating and informing the public and medical profession.
Newsletter
If you would like to go on the mailing list for "Loosely Speaking" I have now added a printable subscription form to the website for people wishing to join the EDFNZ. We welcome those with EDS/HMS, their family, friends and medical caregivers to join. If you just have an interest in EDS you can also join as a Friend of the Foundation. Donations are also most welcome and are used to benefit our members by paying for the printing of our newsletter, the distribution of medical information as well as helping maintain this web site.
Recent Media Coverage of the Ehlers-Danlos Foundation of New Zealand
The
Dominion Post ran an article on EDS in the
Health Section on May 16th 2005.
A small piece on EDS and the EDFNZ was published in Hawkes Bay Today in May 2006. There were also mentions of it in the Central Hawkes Bay Mail and again in HB Today in August 2007.