Who Are We?
The Trustees.
Janette Longshaw (Founder)
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Janette
(Jen) Longshaw was born in Dannevirke but now lives in rural Central
Hawkes Bay, New Zealand. She wasn't diagnosed with EDS until she was
23 after many years of fruitless doctors' visits and began the support
group in May 1995. Her interests include reading, writing, music,
painting, animals, gardening, spinning and the computer.
1016 Matheson Road, R.D.4., Waipawa, Hawkes Bay, New Zealand. Ph.+64-06-856-5577 e-mail: flopsy@ihug.co.nz
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Peter Thompson
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Peter Thompson was
born in Timaru and currently lives in Pareora in the South Island. He worked as a law
clerk for thirteen years. His hobbies are fishing, shooting, whitebaiting
and sport. His motto is that there is always someone worse off than
yourself.
19 The Avenue, Pareora, Sth Canterbury, New Zealand. Ph. +64-03-612-6100
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Fay Horne
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Fay is in her
mid-sixties and her Ehlers-Danlos was misdiagnosed as Cutis Laxa until 18
years ago. She has two sons with Ehlers-Danlos and three grandchildren who
fortunately appear to be clear at this time. She is interested in reading,
crosswords, knitting, and at the moment is trying to improve her computer
skills. She also helps with the Arthritis exercise and Hydrotherapy groups
in Napier.
Ph.+64-06-834-1999
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| Stu Irving | A businessman
currently residing in Palmerston Nth, New Zealand..
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| Margaret Ridler | A homemaker residing in Napier, New
Zealand.
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