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Ehlers-Danlos Foundation of New Zealand
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Please note that only a couple of pages from the newsletter are reproduced here.
It is with great sadness that I write of the passing of Jack Braithwaite, a former Trustee of the Foundation, on 19 December 2005. Jack was involved with several public organizations and was very supportive in regard to advising on certain issues that arose when I was forming the Trust. He also made many wise suggestions that I still follow today. Our thoughts are with his wife Margaret, his family and friends at this sad time. Jack will be sorely missed Another of our members, Alan Strachan, was the first person I had ever met with EDS when I began the group in 1995. Alan has contributed to Loosely Speaking a couple of times before but has now put many of his experiences down on paper in the hope of helping other EDSers prevent some of the problems he has had in the past. Although he has Vascular Type EDS I am sure there are many ideas in Alan’s story that we can adapt to our own situations. As he stresses though, everyone is different and you should discuss any new treatments with your health professionals. I need some more personal stories for the next issue of the newsletter so if you haven’t written anything before please consider putting pen to paper. Poems are always popular or perhaps you’ve done something interesting lately. It is great to read positive stories as well as the informative pieces.
Regards, Jen Click here for one of "Your Stories"
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Copyright © 2000-2006 Ehlers-Danlos Foundation of New Zealand
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